Community Services - Oxford Health NHS Foundation Trust

Community Services - Oxford Health NHS Foundation Trust 2024-05-16 Person 4 5 0

After a shaky start due to post Covid waiting list challenges and undiagnosed autism we have been well supported. The staff are professional and caring and the team seams to be growing in size. We were very fortunate to be allocated an excellent clinician who worked tirelessly to support our 15 YO daughter to find reasons to recover from AN from within herself.

Clinicians to be reflective about the FBT model and adapt as needed to individual patients. Work with PEACE to build understanding of the co-occurrence of EDs and neurodivergence.

Community Services - Oxford Health NHS Foundation Trust 2024-05-16 Person 4 5 0

Understanding about my health

nothing

Community Services - Oxford Health NHS Foundation Trust 2024-05-16 Person 4 5 0

Our medication (ADHD) reviews have been a lifeline since our son started displaying really difficult behaviour- increased frequency (3 monthly) & analysis of behaviour log,contact with school regarding SEND support & EBSA.Way above & beyond & referral to MASH for further support. An absolute lifeline for our family...

Initial diagnosis was slow (but I'm aware of stretched resources.) 1st referral (pre-school) denied & finally diagnosed in y.5. Shocked that once ASD & ADHD was diagnosed-would have been sent off with just-report to school, list of support groups & chance of post-diagnostic courses. Only agreement for medication gave us the access to regular contact-in the form of reviews-that has been vital for us.

Community Services - Oxford Health NHS Foundation Trust 2024-05-16 Person 4 5 0

Our daughter has been well cared for by the staff

Email communications are not always responded to. We have to either send another email or phone the office to try and get answers to queries or requests.

Community Services - Oxford Health NHS Foundation Trust 2024-05-16 Person 4 5 0

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Community Services - Oxford Health NHS Foundation Trust 2024-05-16 Person 3 5 0

That is what she said. But nurse Lexi seems to really understand her well.

More tailored, patient-led approach. Take on board what parents and patients say about autistic needs.

Community Services - Oxford Health NHS Foundation Trust 2024-05-16 Person 4 5 0

Having discussed this with my child, this is how they feel.

Not a criticism, because I know resources are limited and you’re doing the best with what you have. But, if you had all the resources in the world, it would be good to have a verbal update each day as to how Trinity has been from the staff. It would have been good to talk through what Trinity was going to experience/ be given when she arrived… although I was away, and I haven’t returned a call, so there’s more I can do too.

Community Services - Oxford Health NHS Foundation Trust 2024-05-16 Person 5 5 0

Excellent

Community Services - Oxford Health NHS Foundation Trust 2024-05-16 Person 4 5 0

My child wanted to show her physio what she could do at the park,so I asked if we could do a session there and the physio was very supportive of that. She adapted her session to include time at the park and challenged my child to feel even more different things.

Community Services - Oxford Health NHS Foundation Trust 2024-05-16 Person 4 5 0

Respectful, Patient, responsive

NA